Celebrating Milestones: A Year of Achievements for LDA Research
Join us as we celebrate a year of extraordinary accomplishments at LDA Research! From the launch of our thriving Rare Disease Network, complete with the engaging podcast series ‘Rare Together,’ to our successful debut at the Quirks New York 2023 exhibition, and the distinction earned by our Market Research Executive, Thomas Downe, this year has been nothing short of remarkable. Discover how we’re making a difference in the world of rare diseases and market research. #RareDiseaseNetwork #MarketResearch #QuirksNewYork #Distinction
The Evolution of Medical Market Research: Trends and Predictions for the Future
From patient-centred care to real-world evidence & value-based care, discover how advancements in technology and data analytics are reshaping the industry.
The Role of Medical Market Research in Transforming Patient Care
Discover why market research is essential for transforming patient care. From concept to pricing, read more to understand how it shapes innovation and facilitates effective care delivery.
No One Left Behind
David Napier shares his journey with LDA Research advocating the need for more medical research into Stiff-Person Syndrome (SPS)
In conversation with LDA Research’s director Lucy Doorbar
As LDA Research continues to grow and broaden its medical market research from working with English speaking countries to offering research in the Spanish and LATAM markets, we speak to founder Lucy Doorbar about the company’s values and vision.
Hidden Pain
LDA Research spoke to Sickle Cell Disease patient leader Alidor Gaspar about the quality of care he has received in a society that doesn’t see invisible pain, and the urgent need for blood donations, in support of World Sickle Cell Day
Introducing Susana Londoño-Zuluaga our new research manager
We have recently welcomed new research manager Susana Londoño-Zuluaga to grow and broaden LDA Research’s medical market research to the Spanish and LATAM markets.
In Overtime
Today, Dr. David Fajgenbaum celebrates being in remission for ten and a half years from the rare Castleman disease. LDA Research’s director Lucy Doorbar talks to him about how he discovered a treatment for his disease, and the importance for pharmaceutical companies to understand the patient experience.
Rare Together
LDA Research consultant, Andrew Grant, highlights the shared common experiences of rare disease patients discussed in our Rare Together podcasts
Beyond the Stigma
Niemann-Pick UK actively works to raise awareness about the harmful stigma associated with rare diseases and disabilities, as well as supporting collaborative research, and believe that the patient and community voice is essential to the successful development of new therapies
Health tracking – the new frontier in self care?
Our research and Project Manager Rachel Barnes looks at the rise of healthcare apps and how LDA Research is supporting their development
Rare Disease Girl
When Taylor Coffman went to give birth, she knew there would be risks and challenges, but she didn’t expect to trigger a rare disease that almost killed her multiple times. Luckily she survived to be a mother and advocate for all patients.
Following our Rare Together podcast with Taylor Coffman about living with the aggressive rare disease atypical Hemolytic Uremic Syndrome or Complement-Mediated Pregnancy-Induced Thrombotic Microangiopathy, we asked her how to make rare disease voices heard on a larger and more lasting scale.