The Longest Journey: How Rare Disease Networks are Transforming Patient Journeys
Rare Disease Networks Perspectives Series – Blog 4/5 The Longest Journey: How Rare Disease Networks are Transforming Patient Journeys There is a particular kind of
Rare Disease Networks Perspectives Series – Blog 4/5 The Longest Journey: How Rare Disease Networks are Transforming Patient Journeys There is a particular kind of loneliness that comes with a rare disease diagnosis. It is not only the uncertainty of a condition that few clinicians have encountered, or the exhaustion of a care journey that […]
Rare Disease Networks Perspectives Series – Blog 4/5 The Longest Journey: How Rare Disease Networks are Transforming Patient Journeys There is a particular kind of
Patient sensitivity is vital to medical market research. We believe an ethical approach to researching sensitive health topics is essential to good quality research. Ensuring
Regulation, by its nature, is cautious. Agencies tasked with protecting public health are not designed to move fast; they are designed to be rigorous. Yet
Hi, I’m Susana Londono, a Research Manager at LDA Research, specialising in research across Latin America and Spain. I joined LDA in June 2024, bringing
For most of the twentieth century, the pharmaceutical industry’s relationship with rare diseases could be summarised in a single phrase: studied indifference. The economics were
As medical market research has moved increasingly online, and as social media has widened access to recruitment opportunities, fraud prevention has become more important than
