
A Journey of Resilience: Marcus’ Fight Against Rare GRIN2A Disorder (Part I)
At LDA Research, we know that behind every data point is a real person, a real family, and a real story. We’re sharing one of
At LDA Research, we know that behind every data point is a real person, a real family, and a real story. We’re sharing one of those stories from Mariah from Minnesota, USA. It’s a story about her, her son and navigating a rare disease diagnosis, the challenges of accessing specialized care, and what she’s learned […]

At LDA Research, we know that behind every data point is a real person, a real family, and a real story. We’re sharing one of

Senior moderator Leigh Hart explores the role of pharmaceutical companies in the Rare Disease Networks, what was planned and how it has worked out. Rare

Senior Moderator Andrew Grant explores the capabilities and limitations of AI in qualitative research, sharing first hand insights from an experiment using Google Gemini to

This Chronic Disease Awareness Day patient advocate Roxanne Murray strives to ensure no one is left unseen or unheard in the MS, chronic illness and

Our senior research manager and blog contributor Rachel Barnes is celebrating working with LDA Research for a decade. Here she shares her secrets to successful

Issy Clegg examines healing with pride: What LGBTQ+ activism gave to healthcare – and what’s still missing Despite a history of oppression members of the