From Isolation to Infrastructure – The Origins of Rare Disease Networks (blog 1/5)
Across the world, an estimated 300 to 400 million people live with a rare disease. Yet for most of the twentieth century, these individuals lived
Across the world, an estimated 300 to 400 million people live with a rare disease. Yet for most of the twentieth century, these individuals lived
The Day Something Felt “Not Quite Right” One ordinary day, I suddenly had a nosebleed. That alone isn’t unusual—I’ve had them before. But this time,
By Leigh Hart, Senior Moderator @ LDA Research Rare diseases affect an estimated 300–400 million people worldwide, yet progress in diagnosis and treatment has historically
At LDA Research, we know that behind every data point is a real person, a real family, and a real story. We’re sharing one of
If 2024 was the year medicine proved that steady, methodical progress could deliver profound impact without spectacle, 2025 is the year those advances began to
In rare diseases, patients aren’t on the sidelines – they are central partners. Their lived experience fills critical evidence gaps and shapes what “meaningful outcomes”
At LDA Research, we know that behind every data point is a real person, a real family, and a real story. We’re sharing one of
Senior moderator Leigh Hart explores the role of pharmaceutical companies in the Rare Disease Networks, what was planned and how it has worked out. Rare
Senior Moderator Andrew Grant explores the capabilities and limitations of AI in qualitative research, sharing first hand insights from an experiment using Google Gemini to
This year, World Vitiligo Day 2025 will be celebrating its 15th anniversary at an AI-focused summit in Toronto, Canada. The theme is ‘Innovation for Every
Senior research manager Rachel Barnes shares insights into how LDA Research recruits niche respondents and hard to reach patients worldwide for our clients Over the
The quality of medical market research is determined largely by the context in which it is gathered. The qualitative research team at LDA has been