Category: Rare Diseases

SOLE SURVIVOR

LDA Research is supporting CureLONP1.com Aria’s Miracle research fund and her parent’s conviction that hope lies within the global medical and scientific community Aria’s parents need to

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Hidden Pain

LDA Research spoke to Sickle Cell Disease patient leader Alidor Gaspar about the quality of care he has received in a society that doesn’t see invisible pain, and the urgent need for blood donations, in support of World Sickle Cell Day

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Rare Together

LDA Research consultant, Andrew Grant, highlights the shared common experiences of rare disease patients discussed in our Rare Together podcasts

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In Overtime

Today, Dr. David Fajgenbaum celebrates being in remission for ten and a half years from the rare Castleman disease. LDA Research’s director Lucy Doorbar talks to him about how he discovered a treatment for his disease, and the importance for pharmaceutical companies to understand the patient experience.

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