A Journey of Resilience: Marcus’ Fight Against Rare GRIN2A Disorder (Part I)
At LDA Research, we know that behind every data point is a real person, a real family, and a real story. We’re sharing one of
At LDA Research, we know that behind every data point is a real person, a real family, and a real story. We’re sharing one of
When Taylor Coffman went to give birth, she knew there would be risks and challenges, but she didn’t expect to trigger a rare disease that almost killed her multiple times. Luckily she survived to be a mother and advocate for all patients.
Following our Rare Together podcast with Taylor Coffman about living with the aggressive rare disease atypical Hemolytic Uremic Syndrome or Complement-Mediated Pregnancy-Induced Thrombotic Microangiopathy, we asked her how to make rare disease voices heard on a larger and more lasting scale.