Rare Together Podcast

Welcome to Rare Together, the podcast series produced by LDA Research. Join us as we bring together individuals living with rare diseases to share their personal stories and experiences in a series of one-to-one conversations.

Available on YouTube, Spotify, Apple Podcasts, and through the Rare Disease Network Facebook group, Rare Together offers individuals, including those living with rare diseases, caregivers, family members, and healthcare professionals, the opportunity to hear from others affected and gain deeper insights into the unique complexities associated with different rare diseases. Bringing them together by what makes them unique - being rare together.

Rare Together Podcast

Listen on Spotify

If Spotify is your go-to streaming platform for podcasts, we’ve got you covered. You can now follow us on Spotify and add Rare Together to 'Your Episodes' list for quick and easy access. Save an episode for later or listen straight away from your mobile, tablet or desktop device.

Listen on Apple Podcasts

If you listen on Apple Podasts, you can find us there too! You can now subscribe to Rare Together via your Apple Podcasts app and our episodes will download to your device each and every Tuesday, without you having to do a thing.

Listen on YouTube

For those that don't have a Spotify or Apple Podcasts account, you can also access the Rare Together podcast directly from our YouTube channel. Make sure to subscribe and turn on post notifications by clicking the bell icon to notify you as soon as a new episode is uploaded.


Want to be on a future episode?

If your life has been impacted by a rare disease, either through your own diagnosis or that of a loved one, and you want to become a future guest on Rare Together, please consider applying. By getting featured, you'll have the opportunity to raise awareness and advocate for your rare disease, and connect with a growing community of individuals facing similar challenges.

Bringing people from across the globe together

  • Global support network
  • Access to specialists
  • Opportunities to take part in paid research
  • Exclusive access to insights on rare diseases
United by what makes people unique, being rare together. If you have been affected by a rare disease through being diagnosed yourself, through the diagnosis of a loved one, friend or family member, or you are a rare disease specialist, we invite you to join us. The group is free to join, and there are no obligations.
Join today
Rare Disease Network - Rare Together