Category: LDA Research

Celebrating Milestones: A Year of Achievements for LDA Research

Join us as we celebrate a year of extraordinary accomplishments at LDA Research! From the launch of our thriving Rare Disease Network, complete with the engaging podcast series ‘Rare Together,’ to our successful debut at the Quirks New York 2023 exhibition, and the distinction earned by our Market Research Executive, Thomas Downe, this year has been nothing short of remarkable. Discover how we’re making a difference in the world of rare diseases and market research. #RareDiseaseNetwork #MarketResearch #QuirksNewYork #Distinction

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Beyond the Stigma

Niemann-Pick UK actively works to raise awareness about the harmful stigma associated with rare diseases and disabilities, as well as supporting collaborative research, and believe that the patient and community voice is essential to the successful development of new therapies

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When a Baby is Born with Disabilities, and Ignored

As many as 200 million children globally have a rare disease, yet most aren’t diagnosed for years after birth. Instead, parents face an array of difficult symptoms often dismissed by doctors as “typical” developmental delays. In honor of FOXG1 Syndrome, Awareness Month this November, we’ll look at this disease as an example. I’m the mother to a little boy with FOXG1 Syndrome, and I, too, was once dismissed by doctors—to the point where I felt powerless and alone, with nowhere to turn to help my sick baby.

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