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Rare Disease Girl
When Taylor Coffman went to give birth, she knew there would be risks and challenges, but she didn't expect to trigger a rare disease that almost killed her multiple times. Luckily she survived to be...
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Beyond the Stigma
Niemann-Pick UK is a small but agile organisation dedicated to making a positive difference to the lives of those affected by Niemann-Pick diseases. It is globally recognised for its world class...
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Rare Together
LDA Research consultant, Andrew Grant, highlights the shared common experiences of rare disease patients discussed in our Rare Together podcasts
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