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The Power of Networks: Why Rare Diseases Demand Collaboration

Senior moderator Leigh Hart explores the role of pharmaceutical companies in the Rare Disease Networks, what was planned and how it has worked out. Rare diseases are far from rare. An estimated 300 to 400 million people live with one, yet their needs are often invisible to health systems, researchers, and the medical sciences industry. […]

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SOLE SURVIVOR

LDA Research is supporting CureLONP1.com Aria’s Miracle research fund and her parent’s conviction that hope lies within the global medical and scientific community Aria’s parents need to

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