A Journey of Resilience: Marcus’ Fight Against Rare GRIN2A Disorder (Part I)
At LDA Research, we know that behind every data point is a real person, a real family, and a real story. We’re sharing one of
Across the world, an estimated 300 to 400 million people live with a rare disease. Yet for most of the twentieth century, these individuals lived in near-total isolation – medically, scientifically, and politically. No treatments, no dedicated research programmes, and no networks to connect the at times handful of patients and clinicians who shared the […]
At LDA Research, we know that behind every data point is a real person, a real family, and a real story. We’re sharing one of
Senior moderator Leigh Hart explores the role of pharmaceutical companies in the Rare Disease Networks, what was planned and how it has worked out. Rare
Senior Moderator Andrew Grant explores the capabilities and limitations of AI in qualitative research, sharing first hand insights from an experiment using Google Gemini to
This Chronic Disease Awareness Day patient advocate Roxanne Murray strives to ensure no one is left unseen or unheard in the MS, chronic illness and
Our senior research manager and blog contributor Rachel Barnes is celebrating working with LDA Research for a decade. Here she shares her secrets to successful
Issy Clegg examines healing with pride: What LGBTQ+ activism gave to healthcare – and what’s still missing Despite a history of oppression members of the
