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From Isolation to Infrastructure – The Origins of Rare Disease Networks (blog 1/5)

Across the world, an estimated 300 to 400 million people live with a rare disease. Yet for most of the twentieth century, these individuals lived in near-total isolation – medically, scientifically, and politically. No treatments, no dedicated research programmes, and no networks to connect the at times handful of patients and clinicians who shared the […]

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SEEN & HEARD

This year, World Vitiligo Day 2025 will be celebrating its 15th anniversary at an AI-focused summit in Toronto, Canada. The theme is ‘Innovation for Every

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SOLE SURVIVOR

LDA Research is supporting CureLONP1.com Aria’s Miracle research fund and her parent’s conviction that hope lies within the global medical and scientific community Aria’s parents need to

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