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Health tracking – the new frontier in self care? Since the COVID pandemic, there has been a marked increase in the general public’s awareness of their own health and developments in technology have supported an explosion in the arena of health... Continue reading Beyond the Stigma Niemann-Pick UK is a small but agile organisation dedicated to making a positive difference to the lives of those affected by Niemann-Pick diseases. It is globally recognised for its world class... Continue reading Rare Together LDA Research consultant, Andrew Grant, highlights the shared common experiences of rare disease patients discussed in our Rare Together podcasts Continue reading In Overtime Today, Dr. David Fajgenbaum celebrates being in remission for ten and a half years from the rare Castleman disease. LDA Research’s director Lucy Doorbar talks to him about how he discovered a... Continue reading